Overview
In the IDD community, support is not just about services—it’s about connection. National and local associations have helped shape the IDD field for decades, providing advocacy, education, and leadership that ripple across families, agencies, and policy. Among these, The Arc stands out as one of the most established and impactful organizations working to advance inclusion and equity for individuals with intellectual and developmental disabilities.
Whether you are a family caregiver, a Direct Support Professional, or an agency leader, associations like The Arc play a critical role in building community, driving change, and strengthening the field from the ground up.
The Arc’s national impact
Founded in 1950 by families who believed their children with disabilities deserved more, The Arc has grown into a national network with more than 600 chapters across the country. Its mission is to promote and protect the rights of individuals with IDD and to support their full inclusion and participation in the community.
The Arc advocates at the federal and state levels for policies that support education, employment, health care, and community living. It also provides training, resources, and support for families and service providers—helping to ensure that the IDD field continues to grow stronger, smarter, and more person-centered.
Support for families
For families navigating disability services, associations like The Arc provide more than information. They offer guidance, emotional support, and a connection to others who understand. Whether it’s learning how to apply for Medicaid, understanding an IEP, or navigating the transition to adulthood, being part of a supportive network makes the process less isolating and more empowering.
Many local Arc chapters offer advocacy assistance, caregiver trainings, and family engagement programs that help families stay informed and involved in their loved one’s care.
Benefits for providers
Service providers also benefit from staying connected to organizations like The Arc. Associations offer insight into evolving policy, connect agencies to advocacy efforts, and create space for peer collaboration. When agencies participate in association events, working groups, or state coalitions, they stay ahead of regulatory changes and contribute to shaping the future of the field.
For new and established agencies alike, being active in the IDD provider community is not just helpful, it’s also strategic.
Advocacy meets service
One of the most powerful things associations do is bridge the gap between lived experience and service delivery. They ensure that the voices of individuals with disabilities and their families are heard in the systems that serve them. By connecting advocates, self-advocates, and providers, organizations like The Arc help center the real needs of individuals, and keep the IDD field focused on dignity, inclusion, and equity.
Building future leaders
Associations like The Arc help develop the next generation of leaders in the IDD field. Through mentorship, professional development, policy training, and public speaking opportunities, they empower self-advocates, family members, and agency staff to take on leadership roles at every level.
For agencies, encouraging staff to get involved with associations is an investment in both professional growth and organizational strength. When staff are connected to statewide or national movements, they bring new ideas, energy, and insight back to the individuals and teams they serve.
Giv and The Arc
At Giv, we believe that strong systems require strong partnerships. That’s why we’re proud to partner with The Arc to help support their mission of empowering individuals with IDD and the agencies who care for them. Our software is designed to reduce administrative burden, support quality care, and help providers focus on what matters most: the individuals they serve. While this partnership is a new step for Giv, our shared values of equity, inclusion, and care have always been at the heart of our work. Learn more about our partnership here.
